What is RUN?

RUN stands for Rare & Undiagnosed Network. We’re a group of advocates, patients, families, researchers, and healthcare providers who share the same mission and vision:

To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.

Nearly 1 in 10 of your friends, family, and colleagues are living with a rare or undiagnosed disease – half are children.

Join the RUN community and change everything.

Why they are Awesome

  • Nearly 1 in 10 of your friends, family, and colleagues are living with a rare or undiagnosed disease – half are children. The RUN community is working to close the gap and bring awareness to rare & undiagnosed diseases.

How To Connect Kindness

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